"Don't give up," the mom, Tiffany Palmer, told The Today Show.

The story began even before the baby—named "Jack"—was born. At 20 weeks of Tiffany's pregnancy, an ultrasound revealed devastating news: Their unborn baby had a major heart defect that would kill him if nothing was done.

"We were just devastated, crushed, hopeless," Tiffany told Today. "Instead of planning to bring home a new baby like we were hoping, we were feeling [as if] we had to plan a funeral."

Desperate, Tiffany and her husband, Chuck, began searching for hospitals that might be able to help. Doctors at St. Louis Children's Hospital provided hope. He was born on Jan. 16, sick and needing life support just to stay alive.

Almost immediately, they had to make a decision: Wait for a transplant—which could require a long wait—or withdraw life support, Today reported.

"His brain was perfect. His other organs were perfect. There was nothing else wrong with him but his heart and lungs," Tiffany said. "We felt like withdrawing care would be inhumane."

She added, "We knew it would be a very long tedious road and that Jack may not even survive to transplant"...

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